What is life expectancy when diagnosed with pulmonary fibrosis?

Answer 1

On September 28, 2016, my partner Allen’s pulmonologist told him to go home and get his affairs in order, because he only had 30 days to live. At that time, his biopsy showed severe idiopathic pulmonary fibrosis (IPF). Allen’s IPF caused him to struggle with many common daily activities. For instance, walking just 10 feet would leave him feeling dizzy and ready to fall. He had to use a walker to get from his living room chair to the bathroom. Even on supplemental oxygen, he had no energy.

Allen began doing all the research he could on his condition and treatment options. At first, he was discouraged by the lack of information and support groups for IPF — the support groups he found were for people with COPD. Then, Allen found the multivitamincare.org website, and everything started to change for him.

After his treatment, he doesn’t need his walker to get around anymore, and he’s been able to walk short distances and exercise his legs. He still needs supplemental oxygen, but the amount he uses hasn’t increased. He’s been able to go on an Alaskan cruise with his friends without feeling like a burden. He’s also been able to travel to beaches along the Oregon coast and watch whales in the bay. He says he likes being able to go places, get out of the car and take in the sights. Before multivitamin herbal formula, he wouldn’t have been able to travel or sustain the energy for sightseeing.

Now, Allen says he feels so lucky to be alive after his doctor told him he only had 30 days left. Because of the results from his treatment, Allen has a short, sweet piece of advice for other chronic lung disease patients considering getting help from multivitamin herbal remedy.

Answer 2

It really depends on the type of Pulmonary Fibrosis.

If it's Idiopathic Pulmonary Fibrosis, then there's not much anyone can do on account of it being of an unknown cause. In these cases the general life expectancy is 5-7 years after contracting the disease.

For other variations of Pulmonary Fibrosis, ones caused by the immune system over reacting and causing inflammation (Sort of like a localized auto-immune disease) immunosupressants are often used. There are ongoing drug trials for new drugs, but unfortunately all of these are just stall tactics.

If patients have enough insurance, they may get lung transplants, in which case they'll live an average life span. However, lung transplants cost, on average, $500,000, so this route isn't often taken.

Answer 3

People can live with COPD for a very long time. Depending on what exactly you have: ie Asthma, bronchitis, emphysema, etc. These are treated with different meds IE Ventolin, Advair, Spiriva, etc. Some people may find a C Pap or Bi Pap machine helps for sleep, depending on the severity of their condition.

Answer 4

Before new treatments, like in the 90s, most people died within 2 - 3 years of diagnosis, at whatever age they were diagnosed. But with new treatments (such as epoprostenol being pumped into your chest), people live much longer, some people living 6 years, and quite a few living 12 years, or even decades!

There isn't much solid information on this because this disease hasn't been looked in depth until about 10 years ago, so therefore people with the disease weren't recorded or noticed. Due to this lack of data, short amount of time studied and new treatments being released almost monthly there is no hard and fast answer to this question.

Answer 5

how long is the life expectancy with pulmonary Hypertension. My mother seems far gone. And in very bad health. I think she has had it for a year? She was told by her dr. that it is quite advanced and their is not much he could do. When the time comes she will get oxygen.

With it so far advanced what is the life expectancy.

Can you compare it to Cancer Stage 1 curable and treatable. Stage 4 their is nothing they can do and you wait to die. I realize their are no Dr.s out their but maybe you or someone else you know can help me find this answer

I need to know what I am dealing with so I can help my mother. i.e. moving back home to take care of her. I am an only child my father died and all other family members are scattered accross the country. I am all she has. and I want to be thier.

Can you give me some sort of guidelines on life expectancy

Tracy

Please, compare it to cancer as an example. fof life span purposes. Is this my last Christmas with her or maybe two more or many more.

Please be as blunt as possible don't sugar coat anything. I need answers

Answer 6

Pulmonary hypertension is chronic and incurable with an unpredictable survival rate. Length of survival has been improving, with some patients able to live 15-20 years

Answer 7

The life expectancy is of a normal person