Answers.com > Wiki Answers > Categories > Health > Women's Health > What is the work of the IBCARF Inflammatory Breast Cancer Advocacy and Research Foundation?

Other contributors have said "Advocates working on spreading the word that knowing the symptoms of ibc is vital for survival?" is the same question as "What is the work of the IBCARF Inflammatory Breast Cancer Advocacy and Research Foundation?" If you believe that these are not asking the same thing and should be answered differently, click here

What is the work of the IBCARF Inflammatory Breast Cancer Advocacy and Research Foundation?

In: Women's Health, Cancer, Breast Cancer [Edit categories]

Answer:

Answer

The Inflammatory Breast Cancer Advocacy and Research Foundation (now known as the Inflammatory Breast Cancer Foundation) is a group of concerned ibc activists who have come together with the knowledge we WILL make a difference in the way Inflammatory Breast Cancer ( IBC ) is perceived by both the general public and the medical community. In January 2008 this Foundation officially renamed: The Inflammatory Breast Cancer Foundation. www.Eraseibc.com

Our ranks come from IBC patients, Physicians, the Media and those affected by IBC.

In October of 2006, the first in the world IBC Clinic opened at MD Anderson's Cancer Center in Houston, Texas. Because of that monumental event, an idea began to percolate, that there was a way to reach out to the masses and lend a hand to those who needed assistance.
How could education and research come together. How could a grass roots movement best aide the public and the medical community in getting the word out that there is a deadly form of breast cancer that has gone unstudied and under-reported for too long.

Thus was the beginning of :
The Inflammatory Breast Cancer Advocacy and Research Foundation; now known as The Inflammatory Breast Cancer Foundation.

At the opening of the IBC clinic at MD Anderson in Houston Texas, Dr. Massimo Cristofanilli
and Dr. Tom Buchholz were introduced as the co-directors of the new clinic.
Together with their team, this much needed medical facility is seeing many new patients and
has begun a data/tissue repository for further research into IBC.

Reporter Michelle Esteban from KOMO TV in Seattle Washington, has done continuous
coverage, (which can be seen at their link: www.komotv.com/ibc) on the need for more
education on this deadly disease, and through her efforts the IBC clinic is seeing more
and more patients. Michelle also won two Emmy Awards for her stories on IBC in 2006 and 2007.

* UPDATE:

The Inflammatory Breast Cancer Advocacy & Research Foundation has officially changed their name to The Inflammatory Breast Cancer Foundation. www.eraseibc.com

The IBC Clinic was named for Morgan Welch, Dr. Cristofanilli's youngest patient, who lost her
battle to this, the most aggressive form of breast cancer.
The Morgan Welch Inflammatory Breast Cancer Research Program and Clinic is currently
seeing new patients and is actively working on their IBC data base (NCI Clinical Trail Number NCT00477100

Inflammatory Breast Cancer Foundation
1415 S. Voss Road Suite 110-162
Houston, TX 77057

First answer by Mareibc. Last edit by Mareibc. Contributor trust: 79 [recommend contributor ]. Question popularity: 15 [recommend question].

[report abuse]

Can you answer these Women's Health questions?

	What is the CPT code for a routine exam?	Answer it!
	What is Metronidazole vaginal gel used for?	Answer it!
	What is it like to have cervical cancer?	Answer it!
	What hormones do the ovaries secrete?	Answer it!
	What are good estrogen creams to raise a women estrogen?	Answer it!

Relevant answers:

How does Cancer research work?
well its that when you write on yourself 5 times or more you get cancer and that the pen or marker can go through your skin and you get black blood that's how you get writing cancer
Is the Livestrong Foundation involved in cancer research?
The Livestrong Foundation is Lance Armstrong's foundation to help to improve the lives of people who have been affected by cancer. They are very involved in progressive cancer research.